He then developed jaundice and had to be under a bilirubin light for 13 days.  As an infant he had severe reflux and we had to hold him up for 20 minutes every time he nursed or he would throw it all back up.  However in spite of holding him up he would still occasionally vomit. Gradually the reflux started to get better until at after awhile, it seemed to settle into a pattern of about once a month.  Also the vomiting became more prolonged.  I tracked what he ate but couldn't find a pattern (except that stress, even good stress like birthdays, Christmas, vacations) would almost always be accompanied by a vomiting spell.

We went to a wedding for my cousin and my son was to be the ring bearer.  With all the excitement of being in the wedding, he had three vomiting spells during the ten days we were gone.  Upon return, the doctor wanted to see him immediately to start running tests.

She also referred us to a doctor in town who everyone sends all the "cyclic vomiting" patients too. On the first set of blood tests his liver enzymes were elevated, so more tests were ordered to rule everything else out. My son was put on antihistamine medication that can help cyclic vomiting syndrome, which is what the doctor diagnosed.

After two months the medicine had no effect and as the second set of tests showed that the liver enzymes had come down significantly, he said the first tests were probably due to some illness, as the white cells were also elevated and since the medicine didn't help the cyclic vomiting there was nothing else he could do.

Praise God for my son's pediatrician. She called a little more than a month later requesting more blood work to confirm the liver numbers had stayed down; unfortunately they had not, so she then sent us to the specialist at a Pediatric Hospital in another town.  They began running tests immediately.  Every time they ran tests the liver numbers went up and up and up some more.

Finally with numbers off the charts, and having ruled out all they could from blood work alone, they decided that it was definitely autoimmune and that they believed it was autoimmune hepatitis.  The doctors told us the only way to confirm and to determine how bad his condition was to do a liver biopsy.  The biopsy showed no signs of autoimmune hepatitis but was consistent with autoimmune primary sclerosing cholangitis. The liver biopsy also showed bridging fibrosis stage 4 (out of 6).  They next did an MRCP which came back negative but they said this test wasn't definitive as it can give false negatives if the condition is not advanced.

They recommended we wait on ERCP, which is the definitive test because my son was so young, and therefore much smaller than an adult; thus the scope could cause damage to the bile system and if it is already compromised the last thing we need to do is take that risk.  The doctor then decided to try a medicine that helps adults with this disease.
They explain that children with this disease are rare and that normally they are not diagnosed until they are far advanced and require a liver transplant; thus there isn't much data on juvenile cases of primary biliary cirrhosis and its treatment. During all this time I was researching this condition on the internet for extra information.

I sent an email to your site (www.liverdoctor.com) and was surprised and thrilled when your customer service person responded telling me that she was forwarding my email directly to Dr. Sandra Cabot and naturopath Margaret Jasinska.  I received my first correspondence from you both at about the same time as the MRCP was being run.  You sent me your recommended diet.  Then the Lord blessed us with a comedy of errors.  I sent an email to the specialist outlining the diet and supplements that you had recommended and told him I planned to start this unless he objected, if he objected to contact me.  He mailed me a prescription for the medicine.  He didn't receive my email and I didn't receive his prescription.  So a month later when my son's liver numbers improved, he assumed it was due to the medicine and so did nothing.
His liver numbers continued to go down, until in July they were normal. We had our already scheduled follow up appointment during which the doctor told us how thrilled he was that the medicine had worked... that is when the confusion was cleared up as there had been no medicine!  He said there was no reason for the diet to have worked because my son wasn't positive for gluten intolerance but that as long as it was working we weren't going to change it.  After one year of normal blood test results, the doctor took down details of Dr Cabot's diet and supplements in my son's file. He said I can't call this a cure but I can suggest others think about trying it because I have a patient who has had such success on it.  July will be 2 years now with normal blood tests.  The doctors continue to warn it could turn around again at any time but we are thankful for all the time that it is normal and hopeful that it will stay that way.  After all according to them this shouldn't have worked to begin with.

Below are the details of the diet and supplements we used:

Diet

  • Gluten-free
  • Dairy-free
  • Meat-free
  • Peanut-free
  • No hydrogenated oils
  • No refined sugars
  • No deep fried foods
  • Plenty of water (at least 8 cups daily)

1000 mg Flax Seed Oil Daily
2 grams of glutamine powder daily in fresh juice
1/4 the recommended adult dose of slippery elm twice daily in fresh juice
1/4 tsp Seleomune powder twice daily in fresh juice
1/4 tsp Livatone Plus powder twice daily in fresh juice At least 1 orange and 1 lemon juiced daily At least 4 oz beet juice daily At least

1/2 cup of green vegetable juice twice daily (usually cucumber, zucchini, and/or spinach but occasionally Swiss chard, cabbage, celery and
others)
At least 1 cup of carrot juice twice daily (often more) A variety of fresh fruits and vegetables daily.
We also tried the some of the raw juice combos and the liver cleansing soup in your book.
I eliminated all antibacterial soaps and medicines (including OTCs like Tylenol, Advil, etc.)from his life.

We followed this faithfully until his numbers had been normal for six months.  Then I slowly started to slack off on some of the juices.  Beet first as that was his least favorite and added back some rare french fries and deserts.  After a year we slowed the supplements.  After a year and a half I tried letting him have some peanuts.  While still within normal, his numbers did come up so we eliminated them again.

Currently we are still:

  • Gluten-free
  • Dairy-free
  • Meat-free
  • Peanut-free

I juice and use supplements only rarely when he is not feeling well or overtired and that is usually carrot and some green vegetable.  I also like a nature's penicillin recipe I found that contains orange, lemon, grapefruit, ginger, garlic, onion, and peppermint in it.  It works well for me and my kids.  He still eats a variety of fresh fruits and vegetables daily.  I still don't use any antibacterial soaps and it is extremely rare that we take any OTC and then if absolutely necessary we use Ibuprofen.

I have attached a spreadsheet of all the blood work I have.  I know I wrote a lot but if I left any unanswered questions please let me know.
I would be happy to answer as I want others to experience this miracle too.

Thanks again,
Lori

PS.  As my son's vomiting episodes decreased as his liver numbers increased and now that the liver numbers are normal he still has an occasional episode (about once every 5-6 months), it has been determined that he probably does have cyclic vomiting syndrome as well.  One doctor said how fortunate, because we probably wouldn't have found the liver issue until it was too late if he hadn't had the vomiting.  The Lord works in mysterious ways.
Thanks again for your part of this miracle.  God bless you both.